I'm MAD at you!!!

I really didn't think this was going to happen but it has. I don't know why I didn't think it would happen with Max, maybe because he was a boy, maybe because he is the baby or maybe because he would feel so indebted to me for giving him life. But he did.

We took Emily to school for her first day yesterday. We (Max and I) then traveled to Wal-Mart to get in some desperately needed grocery shopping since I went to a conference over the weekend. Like everyone else, I don't like taking my kids to the store. They whine and complain and about going, then ask for everything from clothes, to toys, to cereal I would never buy, to candy as the last final hurrah at the checkout. I am more inclined to buy them something when they are not with me as I feel guilty for going without them!!!! Anyway, I only had Max and we went straight to the food section and there it begins. He wants yogurt. O.k. and I pick up the big container of Wally world brand yogurt but no, he doesn't want that yogurt, he wants the little yogurts. Ummmm, no, this yogurt is cheaper and there's a lot more. We get this yogurt or none at all. He then wants string cheese. O.k. string cheese has good nutritional value. He wants Sponge Bob, again no, we will get Cheese Head, more and cheaper. Moving on.........we get to Yogurt Bites. Yogurt bites are bits of yogurt in a crunchy sort of shell like thing. Tastes and reminds me of candy. Max wants yogurt bites. No. I am not buying yogurt bites, we have yogurt. He keeps asking. I keep denying. At this point he hollers, "I AM MAD AT YOU!!!" and storms off. Not too far, just about a 10 foot difference between us.

This shocks me even though I'm thrilled that he is able to tell me specifically what type of emotion he is feeling. So, I tell him, join the club buddy. Your sister's been getting mad at me for awhile too. Can you hear me?

Easter Eggs

The good thing about those plastic easter eggs, is they are great for putting things in and shaking and asking your child to identify which eggs have something in them a' la' Listening Therapy. The bad thing about those easter eggs is you will find them everywhere, you will step on them, your dog will be chewing on them, and they will be hidden around your house until Halloween and you get the Halloween deco out. Can you hear me?

Big Boy Ear vs. Baby Ear, is it working?

O.k. so Max is being a little obnoxious about the newly implanted ear, but only with me. For instance, he has refused to let me work with the new "baby ear". He will however, let his teacher and therapist work with "baby ear" and gives them no problems whatsoever. When I try, he flat our refuses, messes with my head. How does he mess with my head you ask? Picture this. I finally get him to work with me on "baby ear", Hurray! The next morning as we arrive at school he says, "baby ear" not working. Hmmmmm, I look at the processor, yep it's on and the P4 is there, looks good, no flashing lights, etc. I ask him, "Is it working?" He tells me, "not working". Ok. so we go next door to the audiologist. Our audiologist isn't in today, neither is the other cochlear audiologist, soooo someone else gives it a go. She is unable to determine if it is working, other than it appears to be working. After a half-hour, she comes back and says that she thinks it is working and we put it on his ear and remove "big boy ear". I start asking Max questions, nothing. I start doing the ling sounds, nothing. She says his name from behind, nothing. We don't know if it is working or not. Knowing that his teacher checks both processors every morning I haul him over to the school and explain things to her. We take off "big boy ear" and she starts through the ling sounds with just "baby ear" and with her mouth covered. Max repeats all the lings sounds. She asks Max where his dad is and he tells her that his daddy is at work. O.k. "baby ear" is working.

Flash forward to getting home. I ask Max if "baby ear" is working, no response. We take off "big boy ear" and start to go through some pictures in his class book and when I ask, "where's the cat?" he points to something different so fast I can't tell what's going on. We do this a couple of times and then his sister says his name and he looks at her. So I try again, nothing. She says his name again and again he looks at her. I finally give up.

So this morning I ask Max, if "baby ear" is working. "Nope, not working." Luckily, hubby is there and says, "is "baby ear" working?" Max responds, "Yep, "baby ear" working." Hubby asks him a few other questions with "big boy ear" off and Max answers every single one of them. So it is obviously apparent that my son is out to put me in the psych ward for a bit of a vacation. Can you hear me?

First Things First

I know we've been missing lately, blame it on technology with my wonky computer. All is well now, since I have new little mean machine, although I still don't have all my stuff on it.

First things first. We have news!!!!!

Some time ago, I really can't remember when (you really shouldn't expect such things from me) I submitted some funnies for a possible book. Way back in March I received an e-mail stating that "the book" was done and ready for sell. I kind of passed over that e-mail but the next morning went back to get a closer look. Not only was it the book with one of hilarious stories, but Max was on the cover!!!! I have to say I was shocked and surprised!!!! So first things being first, this book needs to be ordered. Here is the link to I Don't Believe My Ears All proceeds from the book go to the Deaf Research Foundation so you might consider ordering one for all your friends too.

O.k. now that the book is out of the way, I want to say that Max is doing fine. New ear is still not caught up with old ear but we're working on it. We are having a little blip in the road, but I'll try to post more about that later when I can wrap my brain around it a little better. One thing that is bothersome and perplexing though, is why he has to put holes in the knees of every single pair of jeans. Can you hear me?

The Surgery Has Been DONE

We went ahead with the surgery on the 23rd due to an ear infection in the left ear found on the 10th. (It always happens doesn't it?) I really didn't want to do the surgery, but it was now or whenever, so we went with now. I think I was more worried about going through this surgery than the first since it felt so much like an elective surgery (which it is both times, technically, but the first he had to have it to hear and well, he was hearing so it seemed more of an elective this time around). It was hard to wrap my brain around doing this again, despite all of the research that shows the benefits of being bilateral, plus there's always the fact that Max is a person first and foremost.

The Saturday night before the surgery I was majorly stressed over the surgery, Christmas, one of our dogs dying, I won't go into all the details, but it was ugly. On the 23rd we headed out at 5 am to get to the hospital by 6:30 am. My pastors had told me to call before we left so they could pray with us, and as we pulled out of the driveway I started to call when Trent said, "Don't call them and wake them up. You're beating a dead horse, you've had people praying for weeks." So I didn't call then, but had plans to call at a more respectable hour before the surgery. Now I drive to the city every single weekday to take Max to school and on that drive we have a 25 minute dead zone. Meaning no cell service. We are in hills, and a lake, forests owned by the government so there are no cell towers until I hit the interstate. I know it's a dead zone. Many times it has dawned on me while in that zone I NEED to make a phone call. I never can, no signal and my phone searches for one but does not find it til we hit the top of the hill before the interstate or we get close to home. That morning, right in the middle of the dead zone, my cell phone rings, I look at it strangely and see that my pastors have obviously called on the "Jesus" line. I'm slightly freaked, not that this is possible, cause all things are possible with God, just that he took the time to open the line for me. So they call and ask why I haven't called yet, and I promptly blame Trent cause it's the truth and any excuse to throw some blame at him seems good to me. They pray for us and I talk to them all the way to the interstate and beyond. That phone never faded, altered, dropped off or any of the other wild things cell phones do. Not one time. On the way, as we were driving in the dark of the early morning, I saw not one, not two, but three crosses lit up. Three is the number in the bible of completion and affirmation and so I was settled.

We got to the hospital and did all the fun pre-op stuff, registered, checked weight and heighth, heart, lungs, ears, marked the ear, I asked a bazillion questions of every single person whether the question was relevant to the surgery or not. (I know, I know, but when I'm scared I yak.) They brought Max his drunken drink (verstead sp?) Not sure of the spelling on that but man, if they could only give it to me.......here is Max and I, he is happily drunk on meds and if I look a little wigged out (which I do, that is a forced smile), it is because I know they are coming to get him soon.




They took Max and I cried, as usual. We were in it for the long haul. I finished the last of my Christmas knitting during the surgery, 5 hours I sat and prayed and knitted. Finally, our audiologists' came in and say they got full insertion, low impedence levels, and flat lines straight across. (They all inform me that this is the best it can get with implants.) I am happy, I am overjoyed and so glad that it is over. Max's doctor comes in and he sits and talks about the surgery, shows the pictures, (please God, no, those are just too much), and generally starts talking about the crazy Governor, the weather, healthcare when his resident comes to get him since he is done with his part. We rush to get some food (cause who in the world can eat when you know nothing) and begin to scarf it down when the recovery room nurse comes to get us. They figured they would have us come to the recovery room (even though it's not allowed) because they don't want Max to wake up and not be able to hear and be really frightened. Since we are eating, she tells us she'll be back in five minutes, but we inhaled in 2 minutes and went in search ourselves. We go in and I see all the patients waiting to wake up. I see Max in the middle, hard to miss him with his gauze turban, and I go over. He wakes up momentarily, two little tears run down his cheeks and I LOSE IT!!!!!!!! WHAT HAVE I DONE? WHY DID I DO THIS? I tell you, that is the worst I think I've felt in a long, long, long time. He doesn't cry just those little tears then he goes back to sleep. The nurse taking care of him in the recovery tells me that it's alright, (yeah right, look at my son), that he's doing good, (yeah did you hear that cough? he sounds like he's trying to cough up his lung, Gads that cough probably hurts as well), they all look like this immediately following surgery, (I don't care what everyone else looks like right now, it's my son I'm wiggin out over). He slowly wakes up again, I ask him if his head hurts (he's a champion lip reader), he says "no." I ask him if his ear hurts, he says "yes". Waaahhhhhhhhh, my baby. After he's been in recovery and all things are stable and the way they should be and no trouble they move us to a room. We weren't supposed to spend the night, but because of the freezing rain and living 76 miles away, yeah we were staying. I was prepared for this though and had packed myself and Max the necessities to stay. We got a huge room and Max drank all of his sprite in 2 seconds and wanted "more". He also wanted to watch Ice Age. What? You've been out of surgery exactly an hour and a half. A movie? already? At 6:00 pm they bring therapy dogs and Max is happily petting them and enjoying the cool bag of toys they brought. He eats every bite of his Happy Meal. He's in good spirits, seems pretty content, not in much pain other than the IV that they left in just in case he would need an IV. He was pretty pissed about that thing on his hand. He also gets overly annoyed when I keep asking him if his head hurts or his ear hurts. Why? I need to know. At around 8:00 pm Trent tells me to take something (meaning take something to knock yourself out), to stop bothering Max about what hurts and go to sleep. (I had no sleep the night before the surgery and tend to get more spastic and won't sleep until I take something. I once went 72 hours with no sleep because I wouldn't take anything and couldn't sleep even though I'd had no sleep.) The rest of the night is Max sleeping, me waking up every 20 minutes for a look see, and every 3 hours for a good stint while they check vitals. Max did wake me up around 2 am as his headwrap fell off. I called the nurse and she and I spent a good 25 minutes trying to get it back on without hurting his ear in the process. Finally it was morning and Christmas Eve. The resident came in and took the head wrap off. And there it was the site of the surgery. Perfect. Just like the first time. He tells us Max's doctor has appointments that morning and that all looks well and we can go. (I find out later that Max's doctor did show up that morning probably right as we were pulling out of the parking garage and I hate it that we missed him. grrrrrrrr) We pack up come home and take a nap (or at least I take a nap). We have Christmas festivities.

Max had no swelling or bruising other than where the electrodes were placed to monitor the facial nerve. One by his mouth on the left side and one in his eyebrow. But no swelling, or bruising anywhere else. (We seriously have THE BEST doctor in the world and I will stalk him if he ever leaves this area.) Here is the picture of him Christmas Eve. (Remember he got out of surgery at 2:30 pm the day before this picture and we had just gotten out of the hospital that morning.)




Max has done extremely well since the surgery. On the day of his post op appointment the doctor asked how he was doing. "Great, playing Speed Racer while standing on his head on the couch." He never did bruise or get any swelling and some of the steri strips have come off so I've taken a picture of him today, 14 days post op, this is his incision.


See!!!!!! You cannot even tell that he had surgery there!!!!! Isn't our doctor amazing????????? I've said it before, and I'll say it again. I LOVE OUR DOCTOR!!!!!

So we are fine, Max's stimulation is set for the 20th of January. His equipment is in and we are waiting for the day (and hoping that it doesn't snow, or have wintry mixes that day). I don't know what to expect this time around, since he is already hearing and I can't imagine that he is going to like the "new" ear at first with all of its chirps and bells and whatnot, til he gets used to it. But I know that he will end up LOVING it. Can you HEAR me?